About the Study
This study aims to explore the current practices and experiences of transition from pediatric to adult care from the perspective of patients, caregivers, and health care providers in three focus areas: Inflammatory Bowel Disease, Diabetes, and Juvenile Idiopathic Arthritis. These three conditions were chosen as they represent three common chronic conditions diagnosed in children in Nova Scotia and may have more linear transfer pathways.
The project team published a poster at the Transition Hub Pop-Up event ‘Virtual Poster Hall’. Three Patient Partners are authored on this project, and the MSSU helped to support their attendance at this virtual event.
This study is now recruiting participants. Please read below for further details and eligibility requirements.
Patients and Caregivers
We are interested in speaking to pediatric patients currently in the process of transitioning from pediatric to adult care, and former pediatric patients who have transferred to adult care within the past 3 years. We are also interested in speaking to caregiver’s whose child is being cared for by at least one pediatric specialist or whose child has transferred to adult care within the past 3 years. Participants in this study, must also care for or be diagnosed with one of three conditions of focus: Inflammatory Bowel Disease, Diabetes, or Juvenile Idiopathic Arthritis.
Participation in this study involves attending a virtual focus group with other pediatric patients or caregivers. Participation in this study will take approximately one hour of your time. In appreciation of your time commitment, you will receive a $25 gift card.
Health Care Providers
We are interested in speaking to IWK pediatric physicians, nurses and allied health care providers (i.e. social workers, dietitians, physiotherapists, psychologists) who have had a patient transition from pediatric to adult care and NSHA physicians, nurses and allied health care providers who have cared for a patient who transitions from pediatric to adult care in one of the three conditions of focus in the past three years: Inflammatory Bowel Disease, Diabetes, and Juvenile Idiopathic Arthritis
Participation in this study involves a telephone or virtual interview, scheduled at your convenience. Participation in this study will take approximately 30 minutes of your time.
If you are interested in participating in the study either as a patient and/or caregiver or health care provider please email:
Liam Rowe, Research Assistant, MSSU at Liam.Rowe@nshealth.ca
Christine Cassidy, PhD RN, Assistant Professor, Dalhousie University
Jackie Pidduck, Transition Coordinator, IWK Health Centre
Amanda Higgins and Amber Collins-Grimmer, Patient Partners