Resources

General

• CIHR Citizen Engagement Handbook

• CIHR Citizen Engagement in Health Casebook

• CIHR Framework for Citizen Engagement

• Health Canada Policy Toolkit for Public Involvement in Decision Making

• James Lind Alliance Guidebook
  Step-by-step guidance for establishing Priority Setting Partnerships. These bring patients, their carers, and clinicians together to identify and prioritize treatment uncertainties for research, using James Lind Alliance (JLA) methods.

Groups & Organizations

• International Association for Public Participation
  IAP2 is an international association of members who seek to promote and improve the practice of public participation in relation to individuals, governments, institutions, and other entities that affect the public interest in nations throughout the world.

  Resources Include:

  • Core Values for the Practice of Public Participation
  • IAP2 Spectrum of Participation
     
• INVOLVE (UK)
  Funded by the National Institute for Health Research (NIHR) to support public involvement in NHS, public health and social care research.

  Resources Include:

  • Briefing notes for researchers
  • Evidence Library
  • Publications
  • Cost Calculator
  • Research Project Database
     
• Patient-Centered Outcomes Research Institute (PCORI)
  A nonprofit, nongovernmental organization with the goal to improve the quality and relevance of evidence available to help patients, caregivers, clinicians, employers, insurers, and policy makers make informed health decisions. Specifically, we fund comparative clinical effectiveness research, or CER, as well as support work that will improve the methods used to conduct such studies.

General

• Canadian Coalition for Global Health Research, KT Curriculum

• Canadian Institutes of Health Research, KT Basics and Primers

• National Collaborating Centre for Methods and Tools, Learning Centre
  Free online learning modules, including “Implementing KT Strategies in Public Health” and “Evaluating KT Strategies in Public Health”

• Ontario Centre of Excellence for Child and Youth Mental Health, Knowledge Mobilization (KMb) Toolkit

Groups & Organizations​

• Canadian Knowledge Transfer and Exchange Community of Practice
  Network of KTE practitioners and researchers; platform for building capacity, networking, and sharing events.

• CanChild
  A research centre dedicated to generating knowledge & transforming lives of children and youth with developmental conditions and their families.

• KnowledgeNudge
  Weekly blog and education and networking initiative of the KT Platform at Manitoba's George & Fay Yee Centre for Healthcare Innovation.

• KT Canada
  A national research network and training initiative, promoting collaboration and excellence in KT.

• KT+ (McMaster University, Health Information Research Unit)
  A searchable database and email alerting system, providing access to current evidence on KT.

• National Collaborating Centre for Methods and Tools, Registry of Methods and Tools
  Searchable registry of KT methods and tools, specific to public health.

• Research Impact Canada
  A pan-Canadian network of universities committed to maximizing the impact of academic research for the public good in local and global communities.

General

• CIHR: A Guide to Knowledge Synthesis
  This is an excellent summary created by the Canadian Institutes of Health Research of what evidence (or knowledge) synthesis is, why it’s important, and the various methods that fall under evidence synthesis research. It also has a useful list of additional sources for further reading.

Methods

• Agency for Healthcare Research and Quality: Methods Guide for Effectiveness and Comparative Effectiveness Reviews
  This resource, prepared by the Agency for Healthcare Research and Quality, provides guidance on conducting comparative effectiveness reviews and improving their transparency and quality.

• CIHR: Synthesis Resources
  The Canadian Institutes of Health Research have compiled a comprehensive list of resources and publications relating to various forms of evidence synthesis, ranging from Scoping Reviews, Realist Reviews, and Meta-Narrative Syntheses to Systematic Reviews and Meta-Analyses.

• Cochrane Training: Cochrane Handbook for Systematic Reviews of Interventions
  This resource details the processes for preparing and maintaining Cochrane systematic reviews, and is considered the gold standard in evidence synthesis methodology.

• Preferred Reporting for Systematic Reviews and Meta-Analyses (PRISMA Statement)
  The PRISMA Statement is intended to improve the reporting of systematic reviews and meta-analyses. While it is based on systematic reviews of randomized trials, it can be used for other types of research.

Groups & Organizations

• The Campbell Collaboration
  The Campbell collaboration conducts systematic reviews on education, crime, justice, international development, and social welfare. They also produce methodology resources and training.

• Cochrane
  Cochrane conducts systematic reviews on health research and health policy topics, with a focus on quantitative research (e.g. randomized-controlled trials).

• The Joanna Briggs Institute
  The Joanna Briggs Institute conducts systematic reviews on various health topics, using qualitative as well as quantitative research, and with more of a nursing and allied health focus.

Ethics

• Tri-Council Policy Statement (2014) document

• The TCPS 2 Tutorial Course on Research Ethics (CORE)

Provincial Legislation - Personal Health Information

• New Brunswick Personal Health Information Privacy and Access Act (PHIPAA)

• Nova Scotia Personal Health Information Act (PHIA)

• Prince Edward Island Health Information Act

Provincial Legislation - Personal Information

• New Brunswick Right to Information and Protection of Privacy Act (RTIPPA)

• Nova Scotia Freedom of Information and Protection of Privacy Act (FOIPOP)

• Prince Edward Island Freedom of Information and Protection of Privacy Act (FIOPOP)

General

• BC SUPPORT Unit, Intro to Health Research for Patients
  An excellent collection of resources for patients and caregivers who are interested to learn more about health research and patient-oriented research.

• Centre for Excellence on Partnership with Patients and the Public, Resources Directory
  An excellent collection of resources for patients and caregivers who are interested to learn more about health research and patient-oriented research.