Exploring the Transition from Pediatric to Adult Care – Quantitative Study

About the Study

Using existing clinical and provincial databases for four chronic conditions of focus (Inflammatory Bowel Disease, Juvenile Idiopathic Arthritis, Diabetes, and Cystic Fibrosis) the aim of this study is to understand patterns of health care utilization and predictors of secure attachment of pediatric patients in the adult system. Objectives of the study include:

  1. To describe the pattern of health care utilization for youth in the four chronic disease groups of focus: Inflammatory Bowel Disease, Juvenile Idiopathic Arthritis, Diabetes, and Cystic Fibrosis; and
  2. To better understand what factors (e.g., age of diagnosis, area of residence, continuity of primary care, number of pediatric visits pre-transfer, length of time between visit to pediatric to adult provider) influence patients securely landing in the adult health care system.

Transition outcomes will be examined by looking at the time between the last pediatric visit to the first adult visit, as well as through the number of visits to adult providers in the 3-year interval following transfer to adult care.

Note: This study is currently in progress. Results are expected by Summer 2021.

Project Leads

Amy Grant, PhD, Senior Health Policy Research, MSSU

Jackie Pidduck, Transition Coordinator, IWK Health Centre

Cassidy Bradley and Sarah Schwartz, Patient Partners