The CONNECT project is nearing completion and the team has been busy sharing their experience and findings with health and social service providers, policy-makers and the Autistic community—an important aim of this three-year project.
In 2019, the CONNECT team participated in five major conferences and events that increased CONNECT’s national and international exposure and contributed to the legacy of this innovative collaboration.
Canadian Autism Leadership Summit — April 2019, Ottawa, Ontario
Aaron Bouma, one of CONNECT’s patients advisors, presented a poster, Innovative Dissemination of Research Findings by Autistic Adults, at the 2019 Canadian Autism Leadership Summit which was organized by the Canadian Autism Spectrum Disorders Alliance (CASDA). The bilingual poster focused on the filming and production of the short-length CONNECT video.
Annual Meeting of the International Society for Autism Research (INSAR) — May 2019, Montréal, Québec
Patricia George-Zwicker, CONNECT Co-Lead, and Louise Tardif and Aaron Bouma, both patient advisors with CONNECT, helped to produce two posters and presented them on behalf of CONNECT.
- One poster, Services for Family-Dependent Adults with Autism Spectrum Disorder: Why Some Are Received and Others Are Not, presented highlights of the CONNECT needs assessment survey data.
- The second poster, A Source of Life-Giving “Autistic Oxygen”: The CONNECT Project and its Lessons for Future Multistakeholder Research on Adult Autism, focused on the patient engagement dimension of the CONNECT project.
|Louise Tardif, CONNECT Patient Advisor, presenting a poster at the Annual Meeting of the International Society for Autism Research (INSAR) in Montréal, Québec, May 2019.||Aaron Bouma, CONNECT Patient Advisor, presenting a poster at the Annual Meeting of the International Society for Autism Research (INSAR) in Montréal, Québec, May 2019.|
Autism Festival 2019 — May 2019, Montreal, Québec
While in Montreal for the INSAR conference, Patricia George-Zwicker, Louise Tardif and Aaron Bouma also attended Autism Festival 2019, an event organized by the Transforming Autism Care Consortium (TACC), a Québec-based research network that seeks to improve the daily lives of individuals with autism and their families. Among the festival’s opening-night activities was a showing of the short-length CONNECT video.
87th Annual ACFAS Conference — May 2019, Gatineau, Québec
Marc Robichaud, MSSU Research Professional, gave a presentation, Le projet CONNECT et ses enseignements pour la recherche collaborative sur l’autisme adulte (translated as “The CONNECT project and its lessons for future collaborative research initiatives on adult autism”). The presentation was a part of a session devoted to research on knowledge translation in the health and social service fields.
Atlantic Provinces Autism Conference (APAC) — November 2019, Fredericton, New Brunswick
The theme for the first Atlantic Provinces Autism Conference (APAC) was “Breaking barriers. Building understanding.” In line with this theme, the CONNECT team led a 50-minute breakout session called The CONNECT project on adult autism: goals, results and lessons learned. The session included the perspectives of two groups: CONNECT researchers, who discussed the significance of the project data, and the Autistic adults who were part the CONNECT team, who reflected on their participation in this innovative research initiative.
While work will undoubtedly continue on peer-review publications, this session is the final CONNECT event and marked the end of the project after a productive and inspiring three-year run.