Volunteer Opportunity: Patient Advisors – MSSU, SPOR PEI Sub Committees

The Maritime SPOR SUPPORT Unit proposes to address patient-oriented health issues through research by increasing the use of routinely collected administrative health data, patient and treatment registries, and to incorporate electronic medical chart information into research and evaluation.
 
The Strategy for Patient-Oriented Research (SPOR) is a CIHR (Canadian Institute of Health Research) led coalition dedicated to research which seeks to improve diagnosis, management, and treatment to enhance health outcomes. Patient-oriented research also seeks to help the provinces and territories ensure rapid access to high-quality and cost effective health care, and to make that care available in a manner consistent with Canadians values.
 
Our vision is that the Maritimes will serve as a Canadian model for evidence-based care and as a centre of excellence in stewardship and management of the health care system. The mission is to efficiently use scarce research resources to build capacity to address critical health issues in patient-oriented and health services research.
 
Position:
The Patient Advisors will join either the Training Committee, the Scientific Committee or the Data and Privacy Committee in order to provide a unique, patient-based perspective. These committees suggest policies and guidelines for SPOR PEI, and play an advocacy role for patients.  The advisors will contribute to the committees by providing direction regarding patient engagement.
 
Function:
The overall purpose of the Training Committee and the Data and Privacy Committee is to provide overall support and guidance to the general operation of the Maritime SPOR SUPPORT Unit, ensuring its success and sustainability.  The Committees ensure SPOR PEI operates in such a way that it is compliant with CIHR’s mandate for the SPOR initiative, particularly with regard to patient engagement.
 
Term:
3-year term beginning in the winter of 2015. Rotation of committee members will allow for representation of diverse constituencies both within and across jurisdictions.
 
Responsibilities:
  • Offer contributions from the perspective of a Maritime patient/citizen.
  • Provide oversight on issues of patient engagement.
  • Provide advice on policies and guidelines for SPOR PEI.
  • Play an advocacy role for SPOR PEI and its work.
  • Declare any potential conflicts of interest.
  • Meet monthly with the Committee, at least one in-person regional meeting per year.
 
Qualifications:
  • Must be a current resident of Prince Edward Island.
  • Possess experiential knowledge of patient experiences and sentiments.
  • Demonstrate interest in improving the health care system through research, especially as it relates to the patient experience.
  • Ability to engage in the work of the committee with a spirit of inquiry; ability to make informed and relevant contributions to the committee’s deliberations.
  • Be a critical, independent thinker.
  • Possess sufficient life experience to provide a broad and balanced patient perspective on issues that arise for the committee.
  • Have a demonstrated sense of community, volunteerism and citizenship.
  • Must not be an elected office holder, declared candidate for public office, or hold any elected or appointed executive position within a political party.
 
Other potentially desirable characteristics:
  • Experience on a volunteer board, public sector organization, or private company.
  • Possess a strong base of knowledge of the challenges and opportunities that face health care within Canada, and specifically within the Maritime Provinces.
 
If this volunteer opportunity is of interest, please send a letter and resume. Applications can be emailed to jonathan.dyer@cdha.nshealth.ca, or mailed/dropped off to 5790 University Ave, Room 212, Halifax, NS, B3H 1V7.
 
The deadline for applications is November 14, 2014. Successful applicants will begin participation in January 2015. For more information, contact Jonathan Dyer 902-473-4546 
 
 

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